Cystic Fibrosis Patient Microbiology Cultures

The UK Cystic Fibrosis Registry Culture is made up of many data items relating to microbiology and cultures grown from samples taken during CF patient encounters at NHS hospitals in UK. The UK CF Registry is a centralised database of all 60 CF centres across the UK. Data are manually entered in calendar years by CF clinical teams for the 99% of people with a diagnosis of CF who consent to their data being donated to the Registry. Data are entered onto a secure web-portal. For more information please see www.cysticfibrosis.org.uk/registry and 'Data Resource Profile: The UK CF Registry' published in the International Journal of Epidemiology (2018 Feb 1;47(1)9-10e).

Webpage:
https://www.healthdatagateway.org/dataset/42ac7c27-a37b-4081-8a33-51ac077e6a4e

Licence:
Name: HDR UK Innovation Gateway Access
URL: https://www.hdruk.ac.uk/infrastructure/gateway/terms-and-conditions/

Tags:

microbiology samples cystic fibrosis culture samples

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