Cystic Fibrosis Patient Chronic Medication
The UK Cystic Fibrosis Registry Chronic Medications is made up of data relating to chronic medications taken by CF patients (taken for more than 3 months.). Medications have been entered by CF centres, primarily relating to pulmonary conditions. The UK CF Registry is a centralised database of all 60 CF centres across the UK. Data are manually enterd in calendar years by CF clinical teams for the 99% of people with a diagnosis of CF who consent to their data being donated to the Registry. Data are entered onto a secure web-portal. For more information please see www.cysticfibrosis.org.uk/registry and 'Data Resource Profile: The UK CF Registry' published in the International Journal of Epidemiology (2018 Feb 1;47(1)9-10e).
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The UK Cystic Fibrosis Registry Chronic Medications is made up of data relating to chronic medications taken by CF patients (taken for more than 3 months.). Medications have been entered by CF centres, primarily relating to pulmonary conditions. The UK CF Registry is a centralised database of all 60 CF centres across the UK. Data are manually enterd in calendar years by CF clinical teams for the 99% of people with a diagnosis of CF who consent to their data being donated to the Registry. Data are entered onto a secure web-portal. For more information please see www.cysticfibrosis.org.uk/registry and 'Data Resource Profile: The UK CF Registry' published in the International Journal of Epidemiology (2018 Feb 1;47(1)9-10e).
metasource: HDR UKversion: extracted_at: 2022-09-05T08:28:24.125862
Webpage:
https://www.healthdatagateway.org/dataset/b5033be2-0744-49c5-a398-a4d3ed4e1debWebpage
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https://www.healthdatagateway.org/dataset/b5033be2-0744-49c5-a398-a4d3ed4e1deb
metasource: HDR UKversion: extracted_at: 2022-09-05T08:28:24.125862
Licence:
Name: HDR UK Innovation Gateway AccessLicence name
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HDR UK Innovation Gateway Access
metasource: HDR UKversion: extracted_at: 2022-09-05T08:28:24.125862
Licence URL
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https://www.hdruk.ac.uk/infrastructure/gateway/terms-and-conditions/
metasource: HDR UKversion: extracted_at: 2022-09-05T08:28:24.125862
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