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Quality of Life of Cancer Survivors: Pilot Patient Reported Outcomes (GOLD)
CPRD GOLD linked Quality of Life of Cancer Survivors pilot survey (QOLP) data from survivors of breast, colorectal, prostate cancer or non-Hodgkin’s lymphoma, diagnosed 2006-2010. Note, these data are not routinely available.
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Quality of Life of Cancer Survivors: Pilot Patient Reported Outcomes(Aurum)
CPRD Aurum linked Quality of Life of Cancer Survivors pilot survey (QOLP) data from survivors of breast, colorectal, prostate cancer or non-Hodgkin’s lymphoma, diagnosed 2006-2010. Note, these data are not routinely available.
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Quality of Life of Colorectal Cancer Survivors:Patient Reported Outcomes (Aurum)
CPRD Aurum linked Quality of Life of Colorectal Cancer Survivors survey (QOLC) data from survivors of colorectal cancer diagnosed 2010-2011. Note, these data are no longer routinely available; contact [email protected] to discuss.
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Quality of Life of Colorectal Cancer Survivors: Patient Reported Outcomes (GOLD)
CPRD GOLD linked Quality of Life of Colorectal Cancer Survivors survey (QOLC) data from survivors of colorectal cancer diagnosed 2010-2011. Note, these data are no longer routinely available; contact [email protected] to discuss.
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BRIAN App - Patient data; treatments, PROMs, multi-modal data and demographics
BRIAN is a patient support app created by The Brain Tumour Charity. It currently has approx. 4,500 users who use it to record information about their condition, treatments and medications, track quality of life, and more.
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HIV PiNS
The HIV Pain in Neuropathy Study contains pain related information about HIV patients suffering from HIV-associated sensory neuropathy (HIV-SN), a frequent complication of HIV infection and major source of morbidity.
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UK Renal Registry - Your Health Survey dataset
Patient-level data for adults with CKD who are under the care of NHS hospital renal centres in England. The data are collected using the 'Your Health Survey', which includes EQ5D-5L, POS-S Renal and PAM.
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HIV & AIDS Costs & Use
!!!! This information is for reference purposes only. It was current when produced and may now be outdated. Archive material is no longer maintained, and some links may not work. Persons with disabilities having difficulty accessing this informati
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*ReputationScore indicates how established a given datasource is. Find out more.