GENOMICS ENGLAND 100K PHE LINKED DATA
This dataset brings together data from more than 500 local and regional datasets to build a picture of an individual’s treatment from diagnosis. Available for patients diagnosed with Cancer (ICD10 C00-97, D00-48) from 1 January 1995 -31 December 2017. Available for patients diagnosed with Cancer (ICD10 C00-97, D00-48) from 1 January 1995 - 31 December 2017 This dataset brings together data from more than 500 local and regional datasets to build a picture of an individual’s treatment from diagnosis. Please note that pseudo_tumour_ids in AV tables and in SACT are assigned to participants by NCRAS and do not link to the tumour_ids assigned by GeL for sequencing and clinical data. Whilst (particularly in the case of single tumour) this may refer to the same cancer, caution should be applied prior to any analysis. av_patient Patient information - demographics and death details. av_tumour Tumour catalogue and characterisation for all patients with registerable tumour. Table's <pseudo_tumour_id> is used to link treatment tables also available in NCRAS. One row per tumour (av* table specific pseudo_tumour_id), per participant at the point of registration of that cancer/tumour with NCRAS. av_treatment Tumour linked catalogue of treatments and sites that provided them for all patients with registerable tumour. av_imd The Income Deprivation Domain (IMD table) measures the proportion of the population experiencing deprivation relating to low income. The definition of low income used includes both those people that are out-of-work and those that are in work but who have low earnings. av_rtd Routes to Diagnosis: cancer registration data are combined with Administrative Hospital Episode Statistics data, Cancer Waiting Times data and data from the cancer screening programmes. Using these datasets cancers registered in England which were diagnosed in 2006 to 2016 are categorised into one of eight Routes to Diagnosis. The methodology is described in detail in the British Journal of Cancer article 'Routes to Diagnosis for cancer - Determining the patient journey using multiple routine datasets'. cwt The National Cancer Waiting Times Monitoring Data Set supports the continued management and monitoring of waiting times sact Systemic Anti-Cancer Therapy (chemotherapy detail) data for cancer participants from PHE covering regimens between 03/2015 and 12/2017. One row per chemotherapy cycle, per tumour (SACT-specific pseudo_tumour_id), per participant. rtds The Radiotherapy Data Set (RTDS) standard (SCCI0111) is an existing standard that has required all NHS Acute Trust providers of radiotherapy services in England to collect and submit standardised data monthly against a nationally defined data set since 2009. The purpose of the standard is to collect consistent and comparable data across all NHS Acute Trust providers of radiotherapy services in England in order to provide intelligence for service planning, commissioning, clinical practice and research and the operational provision of radiotherapy services across England. Data is available from 01/04/2009. The data is linked at a patient level and can be linked to the latest available av_patient table. ncras_did The Diagnostic Imaging Dataset (DID) is a central collection of detailed information about diagnostic imaging tests carried out on NHS patients, extracted from local radiology information systems and submitted monthly. The DID captures information about referral source, details of the test (type of test and body site), demographic information such as GP registered practice, patient postcode, ethnicity, gender and date of birth, plus data items about different events (date of imaging request, date of imaging, date of reporting, which allows calculation of time intervals. Data is available for patients diagnosed between 1 January 2013 and 31 December 2015. lucada_2013 The National Lung Cancer Audit (LUCADA) looks at the care delivered during referral, diagnosis, treatment and outcomes for people diagnosed with lung cancer and mesothelioma. The data items in the LUCADA dataset have been compiled to meet the requirements of audit, and are not to be confused with the data items identified as Lung Cancer in the National Cancer dataset. The audit focuses on measuring the care given to lung cancer patients from diagnosis to the primary treatment package, assessing against standards and bringing about necessary improvements. The project supports the Calman Hine recommendations, the National Cancer Plan and other national guidance (e.g. NICE guidance) as it emerges. lucada_2014 As above. Different schema to lucada_2013.
Webpage:
https://www.healthdatagateway.org/dataset/62c01293-83a5-4d4d-9d36-9d7aa2bf120f
Licence:
Name: HDR UK Innovation Gateway Access
Tags:
genome genomics data dna public health england data-can
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