Search
Product
About us
Contact
Blog

Decode-ME

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic disease affecting an estimated 250,000 people in the UK. DecodeME is the world’s largest ME/CFS genetic study. It has Patient and Public Involvement at its heart.

Description

More detailed information about this field from each metasource.

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic disease affecting an estimated 250,000 people in the UK. DecodeME is the world’s largest ME/CFS genetic study. It has Patient and Public Involvement at its heart.

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Webpage:

https://www.healthdatagateway.org/dataset/dd6e4344-9cee-41f3-8062-6bb9cdfda012

Webpage

More detailed information about this field from each metasource.

https://www.healthdatagateway.org/dataset/dd6e4344-9cee-41f3-8062-6bb9cdfda012

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Licence:

Name: HDR UK Innovation Gateway Access

Licence name

More detailed information about this field from each metasource.

HDR UK Innovation Gateway Access

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

URL: https://www.hdruk.ac.uk/infrastructure/gateway/terms-and-conditions/

Licence URL

More detailed information about this field from each metasource.

https://www.hdruk.ac.uk/infrastructure/gateway/terms-and-conditions/

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Tags:

Tags
More detailed information about this field from each metasource.

Alleviate
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Pain
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Pain Hub
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Fatigue
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

alleviate pain pain hub fatigue

More to explore:

1/20

UK ME/CFS Biobank

Collection of samples and data across the following diseases: Chronic fatigue syndrome Participants: Over 650 participants are included in the study, including ME/CFS participants diagnosed by a physi ...

mapMECFS

mapMECFS is an interactive data portal providing access to research results across many biological disciplines from studies that are focused on advancing our understanding of Myalgic Encephalomyelitis ...

Developing Patient and Public Involvement in Research in Malaysia

Patient and public involvement (PPI) in research has gained increasing acceptance worldwide and is a requirement for many research funding and publication agencies. However, the concept of PPI is stil ...

1958 National Child Development Study - Pain data

This collection specifically relates to a short pain survey (self-completion booklet) completed by NCDS participants in 2002-3.

REPRODUCE-ME

The REPRODUCE-ME ontology is an extension of the PROV-O and the P-Plan ontology to describe a complete path of a scientific experiment. It expresses the REPRODUCE-ME Data Model using the OWL2 Web Onto ...

DOLORISK

Cross-sectional deeply phenotyped cohort with painful and painless neuropathy, focusing on diabetic polyneuropathy and extreme/rare neuropathic pain disorders.

CAPS

The CAPS Study contains pain and symptom severity related information about patients with carpal tunnel syndrome, the most common of the peripheral neuropathies, both prior to and following carpal tun ...

KPIC

9000 people aged >40 characterised with knee pain, other sites of pain, depression and anxiety, quality of life and medications etc.

HIV-POGO

Clinical Phenotyping and Genotyping of HIV-Associated Sensory Neuropathy. This study contains pain related information reported by people living with HIV. It includes those with and without neuropathy ...

Omega 3 Cohort

A nutritional interventional study of middle-aged women with body pain, anxiety, depression, fatigue QoL serum and faecal biomarkers and baseline and follow-up.

Neuropathic Pain Profiling in Retroviral Infection Study (NIPPR)

The Neuropathic Pain Profiling in Retroviral Infection Study: NIPPR. This study contains pain related information reported by people living with Human T-lymphotrophic cell virus (HTLV-1) infection. It ...

The Pain and Interoception Imaging Network

The PAIN Repository is a brain imaging archive for structural and functional magnetic resonance scans (MRI, fMRI and DTI) hosted at UCLA and open to all pain investigators.

HIV PiNS

The HIV Pain in Neuropathy Study contains pain related information about HIV patients suffering from HIV-associated sensory neuropathy (HIV-SN), a frequent complication of HIV infection and major sour ...

GoDARTS

Genetics of Diabetes Audit and Research in Tayside Scotland (GoDARTS) contains phenotypic data (clinical and lifestyle factors), questionnaire responses and clinical examination results of over 16,000 ...

Webex Cohort

Randomized controlled trial of exercise vs standard care in patients with radiographic and clinical knee OA.

Oxford Carpal Tunnel Syndrome (CTS) Cohort

This is a cohort study in patients with carpal tunnel syndrome. It contains both cross sectional (pre-surgery) as well as longitudinal data from patients undergoing decompression surgery (pre and 6 mo ...

GOAL

X-rays at baseline for 2000 hip and knee OA patients and 1200 controls, serum and urine samples for all, WOMAC pain questionnaires, follow up pain, QoL, medical history surgery history 10 years later ...

BathTAP Updating Cohort 1

The BathTAP updating study explores the effect of pain status on n-back task performance in a sample drawn from the general population

Generation Scotland: Scottish Family Health Study

A biobank of data and samples for medical research. GS:SFHS is an intensively phenotyped, family-based cohort for the study of the genetic basis of common complex diseases and response to treatments, ...

BathTAP Switching Cohort 3

The BathTAP Switching study explores the effect of pain status on performance on four different versions of a computerised switching task in a sample drawn from the general population.

Previous Next

Need help integrating and/or managing biomedical data?

Follow our Twitter for updates

Service status

Reach us:
[email protected]

Data is amalgamated and only retrieved periodically.
Some of the resources used by the system:

® FAIRsharing.org
® Bioontology/Bioportal Terms
® Nucleic Acid Research - Database
® re3data.org
® bio.tools
® PubMed - Courtesy of the U.S. National Library of Medicine